Traveling with autistic children: Tips for parents
I met Glenda at BlogWorld last year and found her life story to be an inspiration. Glenda Watson Hyatt avidly writes about disability-related issues. In her autobiography I’ll Do It Myself , she intimately shares her life living with cerebral palsy to show others that cerebral palsy is not a death sentence, but rather a life sentence. She blogs at Do It Myself Blog and Disaboom. She does all this by typing with only left thumb. In this post, she writes about traveling with an autistic child and how it can be a balancing act. How do you balance the desire and need for a family vacation with introducing your child to new experiences while not overwhelming him or disturbing others? This is the first in a two part series.
Peter Bell, the executive vice president at the advocacy organization Autism Speaks and the parent of an autistic teen, says, “some families don’t go anywhere, not even out to dinner, for fear of a situation like what happened to the [deplaned passengers] Farrells — while others, my own family included, opt not to let autism rule our lives.” The Bell family of five has successfully navigated national parks, cross-country car trips, theme parks, ski resorts (where many offer terrific adaptive programs) and Hawaii. Bell encourages parents to try, even though it may not be relaxing and takes extra time and practice, and he urges fellow travelers to be more empathetic.
More and more holiday destinations are accommodating children with autism and other disabilities. Walt Disney World provides front-of-the-line passes for autistic children who find it very difficult to wait in line ups. Other theme parks, such as SeaWorld and Busch Gardens have similar programs. Cruise lines and resorts also attempt to be more inclusive in their organized activities. The Adaptive Sports Center and similar sport centers offer camps and programming that children and parents can try together as a family.
Planning, preparation and practice are key when traveling with a child with autism. In the end, knowing and understanding your child’s specific needs is critical. For some children, traveling by unfamiliar means to unfamiliar lands may be too overwhelming and upsetting. Start small by exploring your neighborhood and local familiar areas. Allow your child’s reactions to guide you how far you travel comfortably.
Tips to consider:
–Research your holiday options and select an environment your child can handle.
–When traveling by air, inform the airline of your child’s special needs so that staff can assist in making the experience as comfortable and stress-free as possible. (Delta Airlines, in conjunction with Atlanta’s Marcus Institute for Development and Learning, is currently preparing recommendations for families traveling with someone with developmental disabilities. The guidelines will soon be available on Delta’s website (www.delta.com). Perhaps other airlines will then follow Delta’s lead.)
–Also inform the hotel, resort or cruise line of your child’s specific needs and ask what special accommodations are available. Request a fridge or kitchenette if eating some meals in the room may provide a calming break. Take your child’s own sheets if that may make him more comfortable.
–Traveling during low seasons on a cruise or at a resort like Club Med means fewer guests and staff will be more available to assist you.
–Travel by car if you think flying will be too difficult.
–Be forthright explaining the situation to those you meet. (The Autism Society of America has wallet-sized cards explaining autism that can be handed to people, including airport security and airline staff.)
–Prepare your child by developing stories complete with pictures that explain exactly what you will be doing and where you are going.
–Pack puzzle books, hand-held electronic toys and audio books plus a supply of familiar juice boxes and snacks in a knapsack for your child.
Whatever happens, stay calm.
Have a happy and well-deserved vacation!
Additional Resources:
- What is Autism?
- Autism Society of America
- This is Autism. In Case of Emergency, Your Seat Cushion… (a must read for the fellow traveler before your next trip!)
- US Department of Transportation: Air Accessibility
- Autism & Airport Travel Safety Tips
- Air Travel with an Autistic Child (a mother shares how she prepared her son for air flights) -
- How To Plan a Vacation with Your Autistic Loved One
- How to Take an Autistic Child to Disneyland
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10 Responses
[...] More on those gifted lives that the raving Left now freely discusses snuffing. Share With [...]
@bookworm room–your link lead to a thought provoking post on your site. Thanks, so often I see only one side of an argument in my little world.
Really great post. As a student pursing a grad degree in Speech and Language Pathology, it’s good to see articles that address travel with kids who are not typical.
[...] out the UpTake blog today. There is a post written by a guest blogger named Glenda Hyatt. Glenda is a very talented [...]
[...] is the second in a two part series about traveling with autistic children by Glenda Watson Hyatt, the first was about tips for parents [...]
There are some very good tips here, thank you.
My son who has Fragile X Syndrome (an autism spectrum disorder) was not bad while traveling, as long as I had a bag of tricks with me to help him with his sensory issues – things to play with, favorite soft toys, ear plugs and later mp3 player in case it was too noisy, sunglasses in case it was too bright for him (outside and inside), things for him to chew on (so that he did not consume his whole wardrobe of clothes while we were away) and his most comfortable clothes.
For long distance flights having “in-seat” screens for him to watch the movies etc was wonderful. We ate outside at restaurants, where possible, or found very quiet “non smelly”, non bright ones, or had take-aways. The compromises were well worth it. He has traveled round the world twice with me, once at 3yrs and again at 9yrs old.
I am currently writing a book for student teachers; a large section of this book will be dedicated to teaching children with special needs. I am looking for parents to write short testimonials that can be featured within the text. If you are interested in writing something..even a few sentences..please contact me at k2broome@wmich.edu
Please help me to educate our future teachers!
Thank You!
I have a child with high functioning autism. He wants to be a travel agent for special needs travelers when he grows up. A few years ago, we did not even go grocery shopping and now he is a well seasoned traveler. I have also learned that fellow travelers and business are more understanding when they see the disability. Not only is my son accompanied by a service dog, but he proudly wears hats and shirts promoting autism awareness.
We have tackled train trips, car trips and cruises with AutismOnTheSeas.com We are thinking of taking a winter trip up north to do some tubing, but not sure we are ready to fly
For Autistic kids who have a hard time staying in there beds, especially when traveling, there is a affordable twin size bed tent for Special Needs kids at myreadysetbloom.com. This would hae worked perfectly for us on our last trip.
We designed a bed tent for autistic children that is mobile enough to travel with and also use at home. It’s called the Nickel bed tent, named after our autistic son, Nick. Please check out our web site for more information. http://www.myreadysetbloom.com
Thanks!